I do realise that it’s been a while since I posted anything. Yet again. But I meant to. Honestly. And I am not one for making up excuses – well, apologetic excuses that is. But, I do have one. Cognitive difficulties!
It’s been a while since I wrote something MS related. The past couple of days something has been occupying my thoughts though. How others view you when what you have is an invisible disease. Invisible to all but you that is.
I followed my advice. I put my notebook to good use and started jotting down my thoughts. So I can turn them into blog posts. And it made me feel good. About me, about what I do, about what I can do. Which to be honest is not an easy thing to do – at least some of the time. Not because of my MS, but… No, wait! It is because of the MS (for the most part at least).
After a month off my blog – I did kind of slack it off during August, because, August – I am finally back. So, let’s have a short update.
August was dreadful. Hot, humid, just unbearable. And coupled with all the work I had to do (on three fronts mind you) I was absolutely exhausted. Drained of all energy and quite frankly dragging my self from home to the office and back. I am certain the heat took a toll on other people too, but having to also deal with MS – as I’ve said before – accentuates things. And no, don’t ask me to quantify how much worse it is, I cannot do that. It just is. Please accept it.
The environmentalists among you probably read the title, blurted out some explicit, and stopped reading. I am pretty sure of it. Those with an active lifestyle (who might like to bake in the sun too) probably think I am exaggerating and being a whinny child. But please, the title is nothing but a funny Doctor Strangelove reference. And if you are still reading, hear me out. I promise it will all make sense in the end.
I am a big TV and movies fan. I do not deny it. I do not try to hide it. I refuse to apologize for it. I would be perfectly happy sitting on a comfortable couch and watching my favorite TV shows or a movie, doing absolutely nothing else and worrying about nothing. Or going to the movies and indulging in the beauty and magic of the big screen – ideally sharing a huge bucket of popcorn with a friend or a loved one and immersing myself in the world that the film I happen to be watching creates. Oh, and no cultural productions and deep thought movies – I like Hollywood and the blunt entertainment it offers.
The pace of modern life can take its toll on any one person, no matter how strong or happy with the life they are leading. It is at times like those, when the hectic rhythm of life and our every day routine become a overwhelming, that you just need to get away from it all. Away from screens, phones, messages, social media – the works.
It’s been a couple of weeks since my last post, and despite having promised that I would post a third post as part of my #WorldMSDay tirade I found myself being overwhelmed by the MS. So, this being the first day in a while that the “fog” has cleared up (not gone, but at least it’s not as bad), here goes.
Today we’ll discuss treatment options, and which might be best.
Today is #WorldMSDay. The actual day I was talking about in my post on Monday. In that post I urged people to go out today (or any day they want to for that matter), and talk to someone with MS. Have them explain what life is like for them, and how their life goes on despite the difficulties.
And two of my colleagues followed that advice!